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Stories

Connect with stories from our community

We understand that sharing experiences can make the endo journey easier. Read on to learn from other people's stories.

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Watercolour image of sad teenager
1 month 1 week ago
Personal stories Symptoms School/uni

Endo Journey

I know it's not just a period.....

Women holding hands facing the sunset
1 month 2 weeks ago
Personal stories Symptoms Diagnosis School/uni

The battle to be recognised

The fight for my endo to be recognised

Teenage girl looking our window
4 months ago
Personal stories Symptoms Treatments School/uni

Surviving Endometriosis at 14

Surviving Endometriosis at 14

Woman holding hands out frustratedly
5 months 2 weeks ago
Personal stories Symptoms Diagnosis School/uni

Far From Normal Period Pain

Pain finally being recognised as endo

Woman exhausted, sitting at a desk, head down on her arms
1 year 10 months ago
Personal stories School/uni

Studying with Endometriosis

Studying with endometriosis

Girl studying
3 years 7 months ago
Personal stories School/uni Self-management

Studying at high school but learning about endometriosis

The story of a young person diagnosed with endometriosis during her final year of high school.

Girl with flowers on hair smiling
3 years 7 months ago
Diagnosis Personal stories School/uni Symptoms Treatments

Endo Warrior

The story of a long term battle with endometriosis. 

Woman looking at medication options for endo
3 years 7 months ago
School/uni Treatments Diagnosis Symptoms Work/life balance Personal stories Fertility Relationships Supporters

Endometriosis from age 12, diagnosed at 23

The story of living with endo from a young age and getting diagnosed in adulthood. 

EndoZone

This project is a collaboration between EndoActive, Endometriosis Australia, Pelvic Pain Foundation of Australia, QENDO, EndometriosisWA, clinicians and researchers at ACT Health, Curtin University, Flinders University, Robinson Research Institute, and The University of Adelaide. This project received grant funding from the Australian Government and Jean Hailes for Women's Health.

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