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Endo basics for school and uni

Understanding how the basics may affect your day-to-day

You may experience some symptoms that make it hard to turn up to classes each day. By understanding what endo is, you can learn how to listen to your body and choose the self-management options that work best for you.

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Quote - Love your body

It can be difficult to know where to start when you are experiencing endometriosis symptoms. EndoZone is here to help you on your journey. The first place to start is to get informed.

You can use our symptom checker tool to learn more about your symptoms and what may help you. It doubles as an Endo Health Report that you can take with you when you see your doctor.

Try our symptom checker

What is endometriosis?

Endometriosis (endo) is a chronic (long-term) condition where tissue that is similar to the lining of the uterus is found outside of the uterus (e.g. on the bowel, bladder, ovaries). The tricky thing with endo is that symptoms vary between people (you may have a lot of symptoms or none). You might notice that you have pain with your period or bleeding that is heavier than you think it should be. Because the symptoms experienced are different for different people, it can be really hard to diagnose just on symptoms alone.

Who does it affect?

Endometriosis generally affects cis-gender women but can affect anyone who is assigned female at birth based on having a uterus and/or having two X chromosomes. It is thought to affect up to 10% of this population. Endometriosis has historically been difficult to diagnose. Many patients who are ultimately diagnosed with endometriosis report a significantly long time between the beginning of their symptoms and the diagnosis (6.4 to 8 years in Australia).

Your story, your choices

Every endo journey is different, and every endo story is completely unique, but you are not alone 

First things to know...

The journey is different each time, and that's ok!
  • Understand the journey
  • Read the myths
Symptoms - period

Period pain that stops you doing your activities is not normal

Period pain from endo

Pelvic pain symptoms can be related to different conditions

Period symptom tracker

Track your symptoms so you can share them with your health provider

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Symptoms

What's normal and what's not?

Endometriosis shares symptoms that can also be seen in other conditions which can sometimes make it tricky to understand.

Most common symptoms to look out for

Heavy bleeding during periods
Period pain
Bowel symptoms

View all

Young girl happy with endo diagnosis pathway

Diagnosis

How do I know if I have endo?

Understanding the diagnosis options can help you prepare for your endo journey. 

Your first steps in diagnosis

Complete an EndoZone Health Report for your doctor 
Find a health care team

View all diagnosis methods

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Treatments

How do you begin to treat endo?

There are many options to manage your pelvic symptoms. Talking to your doctor about medications is a good place to start. 

Most common treatments

Medications to manage your period
Medications to stop your period
Pelvic physio

View all treatments  View self-management options

Stories

Listen to others who have been on this journey
  • Submit your story
  • View all stories
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2 months 2 weeks ago
Personal stories Symptoms School/uni

Endo Journey

I know it's not just a period.....

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2 months 3 weeks ago
Personal stories Symptoms Diagnosis School/uni

The battle to be recognised

The fight for my endo to be recognised

Teenage girl looking our window
5 months 1 week ago
Personal stories Symptoms Treatments School/uni

Surviving Endometriosis at 14

Surviving Endometriosis at 14

Woman holding hands out frustratedly
6 months 3 weeks ago
Personal stories Symptoms Diagnosis School/uni

Far From Normal Period Pain

Pain finally being recognised as endo

Ready to find a medical professional?

The first step should always be to consult with your doctor

  • How to find a medical professional
  • Prepare your own Health Report for a doctor
EndoZone

This project is a collaboration between EndoActive, Endometriosis Australia, Pelvic Pain Foundation of Australia, QENDO, EndometriosisWA, clinicians and researchers at ACT Health, Curtin University, Flinders University, Robinson Research Institute, and The University of Adelaide. This project received grant funding from the Australian Government and Jean Hailes for Women's Health.

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    • For school and uni students
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    • For school and uni students
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